You've been doing so well!! Maysen brought home a cold that everyone got - including you. It's so hard listening to phlegm gurgle in your throat/chest and not cough it up for you. You don't understand the concept of "coughing" yet, so you gurgle. We took you to the doctor earlier this week and they suctioned you out really well. They noted you were still wheezing a bit but the next day you were doing really well. You now weigh 9lb 10oz.
There has been another twist in the case - the University of California read your MRI as something different than everyone else (periventricular leukomalacia). At this point it's hard to speculate anymore which is right and I just put it in God's hands that OHSU will have the answers we need to hear.
They increased your phenobarbital dose and I can completely tell when they increase it - as you are more lethargic. Hopefully you will be off of this soon. I know it's for your own good - as it is protecting your brain from any seizures.
You're sleeping pretty good now. You sleep in your crib and wake up at about 2am and 5am to eat. You like to sleep more on your left side and it seems to be making your head seem flat on that side! You've grown out of your "newborn" outfits and are now in your 0-3 and fitting pretty well.
You pucker your lips just like your brother used to do at your age. Your nose is so small that you flair your nostrils and pucker your lips. It's so cute!
I love you so much - and this illness weighs heavy on my heart. I rack my brain hoping that I did nothing to cause this. Everyone says there's nothing anyone could have done and I know you're going to grow up perfect and excell in every way. I just know it. But I hate that you had such a rough start. Just know we are doing everything in our power to keep you well.
Love,
Momma
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