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So, you were discharged on Wednesday 1.9.08. Dr Goins came in at 4:00pm to do his consultation. Grandma stayed too. Needless to say, we weren’t all that impressed with what Dr Goins had to say. He didn’t do much review of your chart, reports, or consults but yet came into the room saying that he was concerned with some of the abnormalities in your MRI. Dr Pelinka had just talked to the specialists at OHSU who had a very different opinion. Dr Goins let you go home that night and it felt great to get you home!

The next day we saw Dr Pelinka to explain our desire to have a 2nd opinion by the neurologists up at OHSU. She said she would contact them to see if they’d do a consult.

The next day, which was Friday, Dr Herbert called stating that the State had called stating that your eye culture that was taken the day your were seizing came back positive for Varicella (chicken pox or shingles). She wanted to put you back in the hospital for more IV Acyclovir and another spinal tap. Mom put her foot down and said NO! You were/are looking great and it’d been almost a week since you were really sick. She spoke to her colleagues who suggested just a mouth swab for a repeat varicella, which came back negative the next day. However, coincidentally – Maysen just got sent home yesterday with a letter that on December 20th, he was exposed to chicken pox at school.

Whatever the case – you’re doing well now. You have a consult appointment at OHSU for February 15th. The doctors called Dr Pelinka back on Friday (mentioned above for repeat swab) and said that all 4 of them sat down and looked at the MRI and all thought that there was nothing to worry about regarding the abnormalities on your MRI since they were consistent with changes in a brain that was just inflamed by encephalitis and nothing to worry about permanently. You’re #1 on the cancellation list, so we’re hoping that an opening comes sooner than Feb 15th as I’m optimistic that they’ll just let you off the Phenobarbital.

You’re sleeping during the day and awake at night, eating about 3oz every 3-4hrs. My favorite time is at 2am. You’re wide awake and it’s just you and I. Of course dad and I are taking shifts where one of us sleeps well and the other is on duty with you. You really like your baths! You just lay on your sponge bath mat and love the warm water wash all over you. You smile every once in awhile but I think it’ sjust when you toot. I can see the starts of dimples, though! Red hair and dimples – drives the girls nuts!

Will write more later. Your brother is tearing his room up. I love you very much.